Hospice provides setting for book launch

Treetops Hospice has supported the launch of a new book in which a Derby mum shares experiences of her daughter’s rare disease.

Paramjit Oberoi was chosen to contribute a chapter within ‘Huntington’s Disease Heroes’, a collection of stories written by 26 people living with or affected by the rare condition worldwide.

‘Sheenam’s Story’, explains how in 2002 Paramjit’s daughter received her diagnosis of Juvenile Huntington’s Disease aged 19.

Huntington’s Disease is a condition caused by a faulty gene within a person’s DNA, that damages nerve cells in the brain, causing them to stop working properly.

Paramjit read extracts from her chapter at the recent book launch at Treetops, which has supported the family for several years.

She said: “There couldn’t have been a better place for us to have held this book launch. It feels like Treetops Hospice has been through our journey with us and have lightened our load.

“Treetops has seen Sheenam from when she was able to walk and talk and feed herself to now when she needs 24/7 care. Their love and compassion has not altered one bit.”